2nd round of Remicade

Sorry this post is a little late...I spend more time in doctor's offices than I do at home!  Between Trevor and my mother (who has cancer) I feel like that is all I do!  Anyway...People always tell arthritis or any person with a chronic disease.."Do not let your disease control your life, you control your disease."  (or something like that).  Well I've decided that Trevor has that down to a tee.  He tries to do anything and everything he can do.  Maybe it's denial? Maybe it's a boy thing?  I don't know but I know mentally he does better if he can try to play catch, go outside, etc.  On the other hand, I have decided it 100 % completely controls ME!!!  I think about it probably at least every minute of the day.  I've even gotten to the point that I think maybe I should go back to school and become a scientist to try to figure this whole disease out.(that's really funny if you knew how hard science in college was for me!).  If I am not thinking about it, I am trying to research it.  Any new studies, new medications, new prognosis, and so on.  I just want him pain free and back to himself. 
Anyway, we went again to Shands for Trevor's 2nd round of Remicade.  This time Chad (the husband) did not go but we started out okay.  He was almost done with the infusion when all of the sudden he seemed out of it.  I would talk to him and he wouldn't answer or even acknowledge me.  Well mom panic mode kicked in (internally of course) and I really started to worry.  He just laid there like he was asleep but with his eyes wide open and just staring into space.  When I would ask him a question he would get out of it and say what, what? but then would go right back to this state.  Finally I put the chair down for him and he was asleep, I mean eyes moving behind his eye lids within 2 seconds.  They monitor his blood pressure and temperature every 15 minutes and he seemed okay.  Soon the nurse came over he woke up, she made a comment about him being out of it and then danced for him.  He laughed and seemed back to normal.  I don't know.  I was texting my wonderful friend Heidi (who has two children with JA) that was driving to Shands as I was texting her freaking out.  She said it was probably the Benedryl or one of the medications.  I'm glad he snapped out of it but the first time when Chad went, this did not happen. 
So far, I do not see much improvement with Trevor.  The cooler weather has really gotten him and he aches a lot in addition to the pain he always has in his feet and knees.  We are keeping optimistic and hoping it kicks in soon! 
He told me the other day that in P.E. they were beginning this physical challenge thing.  Before all he ever complained about in P.E. was running.  That really hurt his feet and knees.  Everything else, he would push through any pain and do.  Now, he says that it bothers him to do push ups because it hurts his wrists and ankles and he also hurts when he does sit ups, it hurts his back.  Boy did this take me for a surprise.  That was the stuff a couple months ago he loved to do!!  He knew his tendons and muscles hurt but thought he could at least strengthen his muscles by doing pull ups, sit ups, push ups, etc.  So of course the question I have is, would he be worse without the medication?  If so, this disease is progressing very fast.  Chad tells me that we knew that it progressed fast but I guess I really thought that he would respond immediately to the medication and would be back to normal. 
We go back to the doctor on December 10th.  He will see the doctor and have his infusion.  On a happy note, we actually have our appointments now and the same time as our friends (The Sloan's) so that should make things much better!!!

Here's a picture of Trevor having his 2nd treatment of Remicade.