He also saw Dr. Sukesh today. He still sees and feels a lot of inflammation in Trevor's tendons (Enthesitis). Especially the Achilles and heel area. His knees seemed to look better. But his wrists and fingers not so good. Dr. S said we should start to see some results after this infusion. He did say the weather could play a roll. He wants Trevor to "take it easy" during the winter months. He doesn't want him just sitting around but wants him to go a little easy on himself. He really wanted him to stop PE altogether but Trevor's face showed him that was not going to sit well. He told him to not push himself. For the first time he actually told Trevor that he could do damage to himself if he continues to push himself if he is this inflamed. I explained to the doctor that Trevor is his own demise and that at a field day, his teacher made him stop because of the pain he was causing himself. I hope with it being the doctor telling him, he will listen!....probably not, Trevor just asked if he could play basketball this winter. Fortunately, there are not any leagues for his age group until summer. I really need to find something that he loves to do that will help with his competitive drive. I'm working on swimming. I just don't know if he will go for it.
Our next big issue has been headaches. Trevor has had a headache for 7 days straight. The doctor thinks it may be from the methotrexate or that it may be aggravating his already prone self for headaches. He decreased his methotrexate dose to 3 pills. This made Trevor happy. He hates those pills! We will see if it changes anything. I hope.
I think he could see some sadness in Trevor today. He kept asking him if he knew anyone else at school or anything with arthritis.
Oh another concern was Trevor has lost 4 pounds in one month. He really wants to keep an eye on this. He is concerned with inflammatory bowel disease. He said it is not uncommon to see that along with Trevor's type of arthritis. Although he just had the colonoscopy, it can just begin one day.
He also told us that the enthesitis is much harder to control but once you do, it usually has great results. We are ready for that!!!!
