We traveled 10 hours for this much anticipated appointment with Dr. Laura Schanberg at Duke University. It was a 4 hour appointment. She examined Trevor along with a resident physician. We hit a point during the exam that she pressed on Trevor and asked if it hurt in all of these certain spots and Trevor said yes, yes, yes. I was shocked. We'll then she came to the conclusion that she did not Think he had active arthritis and that he had central pain sensitization. This condition is caused by your brain processing your pain in a different way. She told me we were so fortunate because she was the best and an expert in this field of study. She asked if Trevor would treat there. She told me she would make recommendations for him to his rheumatologist when I said no. She did want to run some labs and other tests first but was pretty sure he had arthritis and this other condition and the central pain sensitization was want was causing his pain at this time.
She handed us a sheet if paper when we walked out and on it I noticed it only stated back pain, nothing of the feet or knee pain Trevor mentioned as his first major complaints.
I was discouraged, sad, we travelled so far and now we have added just another diagnoses to our child?