Bone Marrow test Complete....good news

The bone marrow test is complete and Praise The Lord, Trevor does not have leukemia however, we still do not know what the abnormal bone marrow pattern is. We have made the decision to leave Shands and switch to Dr. Santiago at All Children's Hospital in St. Petersburg.  She is willing to listen to our opinion and research and she understands Trevor is a different patient. She is willing to treat Trevor not just a child with juvenile arthritis. Our appointment with her is on January 23, 2014.  In the meantime Trevor is up and down with the way he feels.  Sometimes he still has times when he cannot stay awake a feels awful (we are figuring this is his flare) and all other times when he just hurts.  He says his pain is always a 5 or 6 and sometimes it will go to an 8 ( when he gets that really tired can't stay awake feeling) or when he does any physical activity for any length of time.

We will see what Dr. Santiago says on the 23rd about the Bone marrow pattern and its relation to arthritis and his next move.  One thing I have told Trevor is we will figure this out!!