You know these biologic medications are wonderful when they work, they lower the immune system to make it stop attacking itself so people can feel better. It all sounds so simple but the catch 22 is it lowers it too much that sometimes people get every cold, stomach virus, whatever is out there!! Ugh! Needless to say Trevor is sick again! Sigh! Maybe a stomach bug maybe a cold, I don't know? But the typical, in addition to feeling sick all of his joints hurt! What scares me is we have not even hit flu season or "sick" season yet!! I hear all of the stories of other JA kids in high school, smart ones, having to drop out and eventually getting their GED's (if they are lucky) and I just wondered how could this happen? Now, this really scares me? Trevor has already missed, counting today, 3 days of school. --he just started school! One was a doctors appointment but yesterday and today he was sick. It takes him about a week to catch up from one day being out. It just really scares me! I can really see now how this happens to these children with chronic illnesses. And of course I probably do everything wrong, I beg him, just get up and go. "You need to just go through the pain." I don't really know how to deal with this, no one ever gave me the instruction manual on this. I don't think anyone can ever imagine what a family goes through when a child suffers with a chronic illness. It is heartbreaking. To the world the family puts on the fake smile and says every thing is fine.
Hopefully this only happens in the school age time and maybe just maybe when he gets older he will not get as sick as much. As for now, maybe I could wrap him in cellophane to keep the germs away?
--Not to mention in July he got a sinus infection and had to go on an antibiotic for 10 days and be off Humira for 2 weeks. (I guess I forgot to blog about this!)--
