On the drive home it made me think, he has been on many, many medications from Aleve to Methotrexate to Remicade to Orencia. So far, nothing has worked for him! Nothing! The most results we have seen have been for 2 months. I know there can be long term damage from arthritis but if the medicine is not working what damage is the medicine doing? I begin to question his diagnosis. Have all these doctors gotten it wrong? The poor kid has been through about every test out there. I guess we will stay the course but by his next appointment if Orencia is not working, we are going to have to seriously get some answers to some of these questions.
The life of Trevor with Enthesitis-related Juvenile Arthritis.
Monday, June 8, 2015
Is it time to throw in the towel?
Trevor had his 6th Orencia infusion today. Just as he was done with the 30 minutes he has to sit and wait with the needle in, he starts to feel dizzy. Last month he felt dizzy when we got home from his infusion but really did not know if it was because of that or what. Anyway, the nurses took his blood pressure again (it's always a little high, but normal for him) and took his oxygen level (it was fine). They had us sit a little longer and after a while, he had to walk around. He still felt dizzy but was okay to leave. We felt that any medicine they gave him would just cause more dizziness.
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