Monday, February 29, 2016

Way too long

No,  not since I posted! Finally Trevor went to the YMCA and played basketball with friends. It has been over a year. He was so nervous. About seeing his friends? Crazy, yes but it has been too long. They talk a lot but it was different. I don't know how it went but it is good. We've decided we are done letting arthritis win. We are done letting it take over his life. Done! His friends are on the basketball team,  they are all tall now, they drive. So many things have changed. But for the first time in a long time, I see hope in Trevor again!
He is still on the blood pressure medicine but we are not sure it has lowered it yet.  He also remains on Orencia and all the other arthritis meds. Yuck!

In school he is starting testing so that is always fun but he will be fine. The school went over the 504 plan with me to help with his accommodations. Two hours in front of a computer with no break is too much for a JIA kid. At least the writing test is computer based now.

We have also began juicing and smoothies. Chad and I feel Trevor could use more fruits and vegetables in his diet so.... So far juicing has been not so good.  I have heard to add pineapple juice to add a little sweetness but he doesn't like the taste. I knew it would take a while to find the right concoction. I think the smoothies might work better. The bananas will mask some of the vegetable taste. When I get some keeper recipes that he likes,  I'll post them. I kinda liked the beet one but I was a minority. 😕 

Thursday, February 18, 2016

High Blood Pressure

It has been awhile since I have posted. We are still struggling everyday. Trevor has an appointment with a physiatrist in April and I am hoping for big things! In the meantime,  things are about the same. Trevor has been in a lot of pain and has swelling in his joints. Especially his back,  shoulders,  neck,  feet, and knees.
Trevor's pediatrician has been watching his blood pressure for about 6 months now. He finally decided to put him on meds. He is going on Lisinoprel 10 mg.  This is so sad to me. I just can't imagine a 16 year old on blood pressure medication!  The doctor feels it is because the amount of passing he is in. I hope that one day he will be able to go off of it but my fear is that he never will. Trevor is 5'9" 153 lbs.  His BMI is 22.  He is not overweight. They have checked his heart and it is fine. High blood pressure runs in our family but not at 16 years old! But we keep fighting,  keep learning,  and keep hope! Until next time...