Well we are on the 7th week of Enbrel and Trevor does not have any relief. It is so discouraging. I really thought we would begin school and be much better. Trevor is counting the weeks and knows that he should be feeling better. I just tell him to give it more time and that sometimes it takes longer in some kids.
Yesterday he was outside playing with friends and he said his knee gave out and hurt really bad. He said it was a different kind of pain. He took a warm bath and we watched it. It was really swollen. When he got up this morning, he said it felt much better. This afternoon, it was not as swollen. This brings up the question I always ask, "Can he do damage to himself by doing too much physical exercise?". He does not understand stop or slow down. I have heard so many different things regarding this and think that the true answer is no one knows!
I just don't want him to lose hope.
I am thankful that our school does not have stairs, neither does his high school. The stairs would not work for him. (These days, I have to find "good" in the little things).
We have applied to attend the family Camp Boggy Creek weekend. I hope to hear from them soon!
I wish I had a more positive post...one day...
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