Tuesday, Trevor will be the remicade infusions. I am nervous but have complete faith in the doctor. We did skip a dose of the Enbrel because of insurance issues and at first thought it had never helped him but as days went by, we could tell a difference. One evening Trevor and some friends were tossing the football out front and they all came running in saying that Trevor was hurt. I went outside and Allie and I had to carry him inside. His big toe area hurt. It was swollen. I really didn't know what to do so I put ice on it. Usually we do heat but for some reason I thought ice in case he sprained it. They all said he was running and just fell to the ground. That night Chad had to carry him to the tub, and carry him to bed. I was ready for Shands the next day. He was better and each day got better. The first day or two his shoe was really tight and he just had to tuck his laces in.
I really hope the infusions help. We are getting a blanket for him and some movies to download onto my iPad for him to watch. They say it should take four hours. We will be exhausted on Wednesday I am sure. So far, his teachers have been very good and supportive of the time he is going to miss.
A question I have for the doctor the next time we see him...when Trevor gets up in the morning he cracks with every step. I can actually tell if it is Trevor or Allie walking around by his sound. Is that normal? I am scared to ask because it just doesn't seem like it would be good.
I will post the first infusion experience after Tuesday. We are hoping to catch a glimpse of the Gators practice after his appointment if he is up to it. Especially after their big win to South Carolina this weekend!
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