Once in a while we have an evening where Trevor wants to spend the night at a friend's house, or hang out outside.....I miss these days. I get a glimpse of them once in a while. It may only be short lived but when it comes, I miss that "old" life.
Trevor has been struggling with his arthritis from getting pneumonia. He gets tired so easily and has now missed school for not being able to move. He said he hurt in places he has never hurt before. He is getting better now but it was scary for a while. He still has congestion and hurts some and I worry when all the extra medicine(antibiotic and steroid) is done, will it all come back?
He wants to play basketball. I talked to the YMCA today and they agreed to refund the money if the doctor said Trevor could not play. I had to sign him up. I am so tired of being the "bad guy". I am always the one saying don't do this or careful of that...I have tried. I have no idea what the doctor is going to say but I tried. For his mental state maybe for mine but all we can do is ask the doctor on February 4th.
One thing I have learned with having a child with juvenile arthritis is that you never know what tomorrow will bring. Will it be a good day? A bad one? You just never know. For Trevor almost every evening is pretty bad but in this crazy roller coaster of a life once in a while I get a glimpse of the way things used to be, a normal evening, Trevor not wanting to come home and play outside until late and wanting to stay the night at his friend's house.
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