The doctor was shocked with how many questions I had for him. Trevor's recent illness brought so many more questions of what to do. Etc. he decided since Trevor was so inflamed he wanted to also give him Toradol to help with the pain and inflammation. This was probably the worst he has ever been when the doctor saw him.
He increased his methotrexate back to 6 pills and gave him a prescription for prednisone just I case he did not feel better in a few days.
Dr. Eanett had told me to get the dosage he is on with all the pre meds and Remicade. He said since the doctors are so far away, it would be a good idea for me to know this. Of course it would. Sometimes, I just don't think of all that medication too! Anyway he is on:
Tylenol- 325 mg
Benedryl - 12.5 mg
Solumedrol- 500 mg
Remicade- 400 mg
The other question I wanted answered was when and not when to take methotrexate. He said the general rule is not to take it until 2 days after a fever and 2/3 days after starting an antibiotic.
He said it was okay to miss a week of methotrexate if he was really sick like before. This helps a lot. I never knew what to do and would get mixed answers from nurses and other doctors. Now I know.
He was concerned with Trevor still having headaches all the time. He wants him to see a neurologist. He recommended All Children's Hospital. I have called to begin the referral process.
All I know is that he feels better. That Toradol and Remicade really helped him. For the first time he was looking forward to this infusion. I hope we stay well and continue on this course. I love life when it seems "normal" and my biggest stress at the moment is having him clean his room!
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