I'm useless

I'm useless is what Trevor told me he was the other night. This was heartbreaking to hear. I tried so hard to tell him everything positive about him. I told him he was smart and motivated and told him that was a great combination. I tried to tell him that not many people turn out to become professional athletes or even play in college. I didn't know what to say.

Stupid rain

Other than illness, the weather really makes Trevor feel bad. He is really having a hard time anyway this week. Yesterday he just could not get out of bed.  He could not go to school. I had to walk him to the bathroom to bathe. It was awful. He did not start feeling better until about 2:00 p.m. Even last night he was telling me he just hurt and ached everywhere.  In his arms near his shoulders,  his legs near his thighs. This aren't joints (tendons,  maybe, but?) 
Every morning I dread waking up.  I never know what condition he is going to be in.  Recently it is not good.  This morning was the same.... but today It is raining. I knew it would be bad.   He tried "for me" to move and bathe but he can't even walk to the bathroom without help our holding onto everything in it's path.
I called for a 2 nd opinion but the first available is in September.  So I'll now have to check the school calendar before I schedule that.  Really?  I feel for the families just being diagnosed.  I would almost feel bad taking an appointment away from them being that far away. 
We see Dr. Sukesh on Monday.  We are ready for a new plan!

May 2013 appointment...when it's time to change

Trevor went to his appointment on Monday,  May 6th.  Dr. Sukesh decided to change most of his medications since he is not having any improvement. He has stopped the methotrexate and remicade. He will begin Leflunomide 20 mg. every day.
We go back to the doctor in July 8th and will discuss adding a new biologic.
Fast forward one week later.  Trevor had a rough couple days after his infusion but started feeling better on Wednesday.  He felt better than he has in a while for 4 days.  Monday I was thinking about calling the doctor to reconsider his decision.  But then Sunday came.  His foot was so swollen,  it probably stuck out 2 inches higher than usual.
His stomach has been really bothering him for about a month now.  He sees the gastroenterologist on May 22nd. I hope it is the meds and not anything else more serious. I hate this disease!