Monday, May 13, 2013

Stupid rain

Other than illness, the weather really makes Trevor feel bad. He is really having a hard time anyway this week. Yesterday he just could not get out of bed.  He could not go to school. I had to walk him to the bathroom to bathe. It was awful. He did not start feeling better until about 2:00 p.m. Even last night he was telling me he just hurt and ached everywhere.  In his arms near his shoulders,  his legs near his thighs. This aren't joints (tendons,  maybe, but?) 
Every morning I dread waking up.  I never know what condition he is going to be in.  Recently it is not good.  This morning was the same.... but today It is raining. I knew it would be bad.   He tried "for me" to move and bathe but he can't even walk to the bathroom without help our holding onto everything in it's path.
I called for a 2 nd opinion but the first available is in September.  So I'll now have to check the school calendar before I schedule that.  Really?  I feel for the families just being diagnosed.  I would almost feel bad taking an appointment away from them being that far away. 
We see Dr. Sukesh on Monday.  We are ready for a new plan!

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