Wednesday, October 23, 2013

Amplified Pain Syndrome?

Instead of getting answers anymore, I think every appointment is just bringing new questions. Our rheumatologist is on board with this central pain sensitization or another name for it amplified pain syndrome (that is the one he likes to use). I have now done some research on this condition and the various programs. If my child was not just diagnosed last year (yes, 2012), maybe I would be more open to the program however, I just do not see that Trevor really fits into the amplified pain syndrome patient.  Many of the symptoms of amplified pain syndrome are:
Body aches
Joint and muscle pain
Abnormal sensations of burning
Tingling
Numbness or pressure
Headache
Chronic abdominal pain
Light touch to the skin causes pain sensations
Dysautonomia 

Trevor has joint pain (he also has arthritis!) and headaches (which he has had since he was 9- inherited from me).
I just don't see it. 
Trevor plays basketball and is as active as he can be. Every chance gets he is outside or staying after school playing football or basketball. 

Nemours is not really sure either.  They said they do not see active arthritis but want to see how things go over the next 4-5 weeks and then determine if he has this syndrome. Meanwhile, Trevor continues with physical therapy 2-3 times a week and he is in counseling.

BTW- his physical therapist was very concerned when I asked him about amplified pain syndrome. he said he would not have but Trevor in that category.

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