Trevor has been having a really hard time. Extreme fatigue, extreme pain in all his normal painful joint and tendon areas but also now his elbows. I've been talking to the doctor's office a lot. They decided to have him come in. So we went to All Children's on Friday, January 30th. They decided the Humira is not working. They want to try Orencia. It is a different biologic medication type that he has ever tried. It targets a different area in his white blood cells. We are praying it works. Obviously with failing three others, I'm a little scared! I'm positive around Trevor and have to believe there is something that will work! Also because Trevor is so inflammed, they want him to be on steroids for 2 months.
As for the Orencia, they told us it could take up to 3 months to get into his system and they would know if it was working by month 6.
All other meds are staying the same until he gets going on the Orencia.
At my request, we are going to try to find a cognitive behavior therapist. This will help him get distracted from the pain. For now when meds aren't working, we have to find other ways.
Also he will begin physical therapy again.
Awwwwww.....something has to work!!!
He should start Orencia in 2 weeks. I'll post more then!
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