So I finally watched the movie "A Fault In Our Stars." It has been out for a while but I've avoided it mainly because of my mom. Currently she is struggling with terminal Multiple Myeloma Cancer. She has been in and out of the hospital and really having a hard time. She has been fighting for over six years now. I just figured I would cry throughout the whole movie so I haven't bothered until now. I had some time, it was on, so I watched it. Boy was that a mistake....But not for the reasons I thought it would be! The struggle was so similar to what we go through with Trevor having juvenile arthritis. The amount of medications, the doctor appointments, the stress, and two things that really hit me hard. First, the girl was so concerned about her parents especially her mom being so consumed with her, her condition, etc that she didn't do anything else. I so often find myself so wrapped up in Trevor and his condition and I see his face. He even says to me "go, do that with dad or go there with your friends." Secondly, the pain rating scale! Anyone who has a child with a chronic illness knows it well and knows it is asked at every appointment, every hospital visit, everywhere. "On a scale of 1 to10, 10 being the worst, how would you rate your pain? " The girl in the movie talks about never saying 10 and saving her "10". I have noticed Trevor never says 10. He usually says 6 or 7. (It breaks my heart that his daily pain level is that high!) Anyway not long after I saw the movie Trevor and I were visiting my mother and she said her pain level was an 8. He made a comment later that for her that was probably a 10 since she never complained. He could tell how much pain she was really in. Trevor then went on to say that he would never say 10. In fact, he said he would also probably never say 9. He has never seen this movie but it struck me as to how similar his response was to the girl in the movie. The girl in the movie was "saving" her 10. I just hope Trevor never has to use his!
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