Saturday, March 3, 2012

The 2nd weekend...

Trevor is doing amazing with the medication.  We gave him his 2nd dose last night and this morning he is up and going "hunting" with his dad and friends.  He said he feels tired but that is about all.  He is still in pain EVERYDAY and is ready for that to stop but we know the doctor said it is going to take a combination of the Methotrexate and another medication (something like Enbrel) that he will start in April to get the pain and symptoms to go away eventually.  He has such an wonderful attitude and really only complains to us at home.  I don't see a difference with his pain level on the higher dose of Naproxen.  Maybe it does take away some of his pain but he is still hurting all of the time. This weekend he did not complain about taking all the meds and did not say "He wanted this all to stop."  Hopefully all the medications will become a habit and not be such a big deal!
Everyday he puts his sun block on even to go to school.  He is very dedicated to doing everything the doctor tells him to do!  We have his 504 meeting at school on Monday so we will see how that goes.  In PE, if the student cannot participate in the activity, they generally make them write papers about sports, etc.  Trevor does not want to write papers at PE, he wants to strength train (push-ups, sit ups, chin ups).  They begin a series on track and running just hurts him too much!  We will see what they say at the meeting.  Why should a child that wants to do physical activity be  forced to write a paper in PE?
I tell Trevor the song by Kelly Clarkson, "What Doesn't Kill You Makes You Stronger" reminds me of him!  He is a fighter and will stand a little taller one day!

1 comment:

  1. Trevor is very strong and great athletic boy. Trevor I promise it will get better, it just takes time for the medication to build up high enough and maintain a steady level in your blood
    to help with the swelling. But Trevor you know I
    totally understand how it feels. So, if you ever
    want to hurt with someone else we can feel bad
    together. Call me and we will complain to each
    other and talk about "our" Bronco's. I love you
    and am so proud of how strong you are.

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