504 plan

Just a little update.  Saturday afternoon Trevor was more tired than usual and took a nap.  On Sunday morning he said he felt nauseous but never got sick.
Monday we had Trevor's 504 plan at school.  It went very well.  The teachers and coaches are all concerned about Trevor and making sure he is accommodated.  During FCAT testing students are not able to stand up which might be a little challenging for him but he does not want to move to different room, he wants to take the test with his teacher and his class.
Trevor did tell me that when he feels stiff from sitting too long in class he goes and pretends to staple his paper just to move around a little.  His teacher told me he also goes and gets hand sanitizer.  (Hopefully he is keeping those germs away!)  I hate not knowing what the future holds or wondering and praying that we have a "good" weekend.  I hate that on Friday Trevor has to take 13 pills (3 different medications) But... I also know that there are so many more people worse off than us.  And I am thankful for what we have and where we are on this journey.  If you would have asked me one year ago about Juvenile Arthritis, I would not have even known what you were talking about or even fathom that I would have a child that was a completely healthy baby, toddler,  and adolescent with such a disease.
On a side note...Trevor loves Tim Tebow.  He has since his Florida Gator days.  I have been working so hard along with Trevor's teacher to have him meet Tim.  He will be in Lakeland for the 2012 Leadership Forum at Southeastern University.  So far we have not been successful.  Tim's annual golf tournament is outside of Jacksonville on April 14th.  We are going to the tournament in hopes Trevor can just see him.