We went back to Shands for our second appointment. We figured we would be told Trevor would be put on Enbrel or Humira and be on our way. We knew talking Trevor into these meds would be difficult but knew this would be our fate. No....one of Trevor's tests showed inflammation in his bowel. Normal range is 0-120. Trevor was a 120. Dr. Sukesh said he considered this high. He made the referral to a pediatric GI. He said he cannot determine what medication to put him on until we determine if he has Colitis or Crohn's. If he does have inflammatory bowel disease, he will have to have infusions once a month at Shands. If he does not, he will go in Enbrel. Trevor had told Dr. Sukesh that the naproxen was not working. He put him on Celebrex.
We have an appointment with Dr. Kaiser on May14th. He will probably schedule a scope and colonoscopy.
Trevor has only been on Celebrex for a couple days but it seems to be helping.
Today, he is having a bad day. There's always tomorrow!
The Arthritis walk is in a couple weeks and we are excited about that. We hope Trevor can get to meet some other children with JA.
Also on a happy note...he got into Camp Boggy. It is a free camp for children with JA with doctors and nurses that stay 24 hours. They will give injections and all other mess to the children!
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