Trevor saw the GI doctor on Monday ( Dr. Kaiser-@ All Children's) Three different tests show inflammation in his stomach and intestines. He will have an endoscopy and colonoscopy on Thursday, May 24th. I'm scared. Scared of the tests, scared of the results and scared of the not knowing. Ever since the appointment, he has had stomach pain. He has had to leave school and sleep most of the day in class one day! They didn't do anything at the appointment except an examine. If he has Inflammatory Bowel Disease, he will have to go on Remlicade (infusions once a month at Shands). If he does not, he will go on Enbrel. Sounds great, right.....I either get to chase my 12 year old around the house to give him a shot or travel 2 1/2 hours once a month to sit 2 hours and watch him have poison injected into him. I just pray one day he goes into remission.
One a good note, we went to the Arthritis Walk in Orlando. It was fun and I think Trevor really felt the support he has around him.
I really wish that people knew this was more than just a Tylenol arthritis commercial.
I am applying for a scholarship to attend the National JA Conference in St. Louis. I am hoping to learn more.
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