A week I would like to forget

This was a bad week. Trevor was late one day of school and missed one day of school. The day he missed, the night before he actually played outside. He got up, took a bath and tried to get ready. He just could not do it. I lost it. I told him he could just not play outside anymore. That he needed to stay inside after school and take it easy. He needed to go to school and concentrate on the important things, blah, blah, blah....he said he would try to come to school (he would have his dad bring him.) He even texted me how sorry he was that he fell asleep in the bath tub and that he felt so bad this morning. A little while later Chad called me at work and told me that he just could not make it to school. He said that even though he played it was the first time he had seen him smile in a long time. Boom! Yes, there it was. Reality! How did I lose sight of it? How did I forget that he is a 13 year old boy that wants to play outside with his friends? I just wish this would all end for him. I wish it would all stop. I wish this horrible disease would go away and he would get his life back! It really seems like he is having a harder time in the morning. Chad has been taking him to school so he has more time to get up and ready (2 hours 15 minutes). He used to be up and ready in 20 minutes and even the beginning of the year it was 30! I don't know how next school year is going to work. He will have to be ready to go at least 1 to 1 1/2 hours earlier. I just don't know if he physically is going to be able to do it. As it is now, he goes to bed at 8 or 8:30 and gets up at 6:00 a.m. He would have to get up at 4:30 or even earlier? I guess we will see how the summer goes.