Monday we traveled to Shands for Trevor's infusion. It was pretty normal. No doctor visit, just infusion. He seemed to tolerate everything well.
For about 2 months he has not been sleeping well. I don't know if it has been pain or what (he does not talk too much about things).
Tuesday we went to All Children's (Dr. Chadahumbe) neurologist, for a follow up on Trevor's MRI of his brain and plan for his headaches. The MRI looked great no lesions or structural problems just my bad genes. She started him on amitriptyline 25 mg. (for now he just takes half a pill) He will increase to a whole pill if the half pill does not work after one week. If the whole pill does not work he can increase to one and a half pills but she does not want him to take more than that. It makes him very tired. He does take it at night. We will see. He is to follow up after 2 months.
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