During the JA Conference, we did a lot of walking, etc. It was so sad because many times Trevor could just not walk any more. One occasion Chad had to carry him for 8 blocks. Another occasion, he had to skip going to the St. Louis Arch because he could just not go anymore. Heartbreaking!!!! So many of the other JA kids have wheelchairs and I thought, he isn't that bad or he won't get to that point but now I am starting to think otherwise. This is devastating along with this entire disease!!! I would in know way allow him to use it when not necessary but I also hate that he is now missing out on things he wants to do because he is not physically able to do it! A friend of ours had one and wheeled him around for a little while and he said it was nice to get off his feet. Again heartbreaking!!!!
Trevor has had his 5th Enbrel injection now and has had no relief what-so-ever. Giving him the injection has gotten better, well in St. Louis maybe not so well. He bruised!!! I of course was surrounded by many parents who give injections all the time and they informed me that I just hit a vein. Really just hit a vein!!! I felt awful!!! One of the moms told me that her son's rheumy said just to give it if not, I would have stick him again! Anyway, next one that I did on Tuesday, went better! He said it did not hurt at all.
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