Tuesday, July 10, 2012

We finally started Enbrel!!!!

Finally after what seems like months, we began the Enbrel on July 9, 2012.  We went to Shands for Trevor's appointment.  Pam, the wonderful nurse practitioner trained us and she actually gave him his first injection.  He said it hurt for 2 seconds.  Friday will be the day I have to give him the next one.  Please pray!!!  I practiced on a squishy pig and did pretty well.  Since Trevor does not really like to take the Celebrex 2 times a day, they changed him to Mobic.  He will take that just one time a day.  He also decided to decrease his Mtx dose to 6 pills instead of the 10 pills.  Trevor has been having some nausea and actually vomited on Saturday, July 7th right after taking the Leucovorin.  They are also adding folic acid every day to help with the side effects of the Mtx.  So medication wise, this is where we stand:
Methotrexate 6- 2.5 mg pills one time a week (Friday)
Leucovorin calcium 5 mg one time a week (Saturday)
Omeprazole 20 mg- 1 pill a day (every morning before breakfast)
Mobic 7.5 mg- 1 pill a day with breakfast
Folic acid-1 pill a day with breakfast except on Mtx day (Friday)
Enbrel 25 mg- 2 shots a week (Tuesday and Friday)

He is able to have all of his required vaccines for 7th grade since he already had the live virus one.  The doctor also wants him to have the flu shot but not the mist only the shot!!!

I have to write this down because I don't know if I can keep it all straight!

I really feel like we are on the right path.  Trevor has been having some really bad days recently. (He has been much more active with it being summer and all). 
Yesterday at the doctor, his feet and knees were VERY swollen and warm and painful.  This was probably the worst he has been at an appointment. 

The Arthritis Foundation is amazing!  We are leaving to go to the National JA conference on Thursday, July 19th!  I hope we come up packed with more knowledge and resources!  19 families from Florida are attending.  I cannot wait!!!

I really don't know where this journey is leading us.  I NEVER thought we would ever go through anything like this.  I know Trevor is a very strong person and will overcome this disease!!!  I am just ready for that to begin!!!  Until that time, our travels continue...

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